Stroke Association

Wellbeing & Fitness

When Misdiagnosis Leads to Locked-in Syndrome: Understanding Your Options and Support

23/04/2026

Illustration in six panels showing a patient with a misdiagnosed brain condition, a person reviewing “YOUR OPTIONS” (medical review, legal support, advocacy, compensation), caregivers assisting a wheelchair user with a communication device, a book titled “YOUR RIGHTS” beside scales of justice, and a small support group talking.

Locked-in Syndrome is a rare neurological condition that can leave a person unable to move or speak while remaining fully…